To Make a Long Story Short...

The past month has been very eventful, and I know it's been a long time since I posted - shame on me! I thought it would be a good idea to give you an update on my life and health. Inquiring minds want to know, apparently. Where to begin? Well...it all began in the spring when a friend of a Facebook friend contacted me and referred me to this website. With all my health issues, the one thing I thought was under control was my thyroid disease. But I soon learned that I, like hundreds of thousands of thyroid patients, was on the wrong medication. I found a doctor in my area who prescribes natural thyroid hormone and also believes in taking elimination of symptoms into consideration when adjusting medication levels, rather than just thyroid lab tests. After 8 consecutive months of gaining up to 10lbs/month, I immediately stopped gaining weight. My new doc also started me on natural progesterone to treat my Polycystic Ovarian Disease (PCOD).

Over the next few months, my doctor continued to monitor my symptoms and my hormone levels, adjusting my medicines accordingly. I almost immediately saw a major reduction in two symptoms I'd been plagued with for years: excessive sweating and severe digestive problems. However, I did develop some new heart symptoms which included an elevated heart rate, chest pain, and sudden drops in my blood pressure that caused me to pass out or fall down. I saw a cardiologist and had several tests done to determine the cause of this. We're still not 100% sure of the cause of these symptoms, and I continue to have episodes with my heart from time to time. I'm told there is nothing wrong with my heart, but that I have another condition that is affecting the functioning of my heart.

In August, a friend and I began following The Maker's Diet by Jordan Rubin, which is a way of eating that follows biblical principles concerning food. I lost a few pounds doing this but nothing major. But then, at the urging of my mom, I started watching a television show called "Know the Cause" on the Christian Television Network. The host, Doug Kaufmann, teaches that most diseases actually come from fungus, mold, and mildew rather than bacteria and viruses. He has authored several books on the subject and also has a website: www.knowthecause.com. The more information I heard and saw, the more I believed that this concept made a LOT of sense. I had been urging my doctors for years to find a commonality among all my diagnoses, believing firmly that one person could not have so many separate diseases without them being somehow related. I wanted to "know the cause" instead of just treating the symptoms with drugs, drugs, and more drugs. So I began the Phase One antifungal diet on September 1st.

In the past several weeks I have lost 25 pounds, I have gotten off 4 medications, and I have seen a reduction in the severity and frequency of my heart symptoms and my cataplexy attacks. This is a miracle! For the first time in my adult life I feel like I am getting better! I can see actual tangible evidence of an improvement in my health. That's not to say that I am cured, by any means. I have a LONG way to go before I could ever consider referring to myself as healthy. And there are still serious health issues involving my heart and liver that need to be addressed. But I believe I am on the right path. And that includes continuing to rid my body of mold, mildew, and fungus; getting off as many pharmaceutical drugs as possible, putting only the purest, natural substances into my body - whether it be food, beauty products, cleaning products, etc.; and supplementing with high quality vitamins and nutritional supplements, tailored to my particular conditions and symptoms.

This is absolutely the hardest thing I have ever done in my life, but I am convinced that I am doing the right thing. And I believe that anyone dealing with a chronic health issue can benefit from the information at Know the Cause and from Doug Kaufmann. Please continue to keep me and my husband in your prayers as this continues to be one of the most difficult times in our lives.

This I can say with 100% assurance, though: God's promises are true, and He is faithful. Take Him up on His offers:

"Call to me, and I will answer you, and show you great and mighty things,which you do not know." Jeremiah 33:3

"If any of you lacks wisdom, let him ask of God, who gives to all liberally and without reproach, and it will be given to him." James 1:5

The Heart of the Matter

Just when I thought I was getting my health on the right track, I suddenly began having problems with my heart. I'll be honest: medical issues involving the heart are pretty scary to me. Both of my grandfathers died of heart attacks and one spent most of his life disabled due to heart disease. Aside from smoking, I have almost every risk factor for heart disease. I should have seen this coming, but I didn't.

It all started a couple weeks ago after my doctor decided to have me try a new narcolepsy medication, Nuvigil, which helps to combat the excessive daytime sleepiness which accompanies narcolepsy. A few days after starting the new medicine, I began having chest pains, my heart was racing, and I was very weak. My doctor did an EKG and made me chew up an extra 50mg of beta blocker, which he prescribed as an addition to my current dose of 100mg. My heart rate went down a bit, but I had the weakness and chest pain on and off for the next several days. My blood pressure, however, really seemed to go down (and it wasn't high to start with). The following Sunday I blacked out and landed face down on the cement front porch, scraping my arm pretty badly. Needless to say, I basically spent the next week lying down.

My doctor said he wanted me to get in to see a heart specialist "right away," which is apparently code for "weeks later" because I just got a call from them on Friday. The suspicion was that I have something called SVT , which apparently is an abnormal firing of the heart's electrical connections. They think the SVT was aggravated by the new stimulant and perhaps has been around awhile and just masked by my severely low thyroid. Who knows? But on Friday when my heart started racing and chest began hurting again, I sensed that something was very wrong this time. I checked my BP and saw that although my heart rate was well over 100, my pressure had dropped to 80/50. I decided it would be a good idea to head to the ER. But then I suddenly got very weak, I had this intense pressure in my chest and was struggling to breathe, and then I heard this loud buzzing in my ears and everything started to go black. I managed to whisper, "Call 911" and "Call my mom" to my husband.

I could barely stay conscious, but I remember thinking that this was it; I was going to die right here on my chaise lounge. I wasn't afraid to die, but I did have an overwhelming sense of regret that I had a lot of things left unsaid or undone. I managed to tell my husband I loved him and that I was sorry our life together had been so hard. By the time I made it into the ambulance my pressure had dropped to 40 diastolic. But the paramedic was very reassuring; he gave me 4 chewable baby aspirin and kept monitoring my vital signs. When the numbers started to go up, I seemed to be able to breathe better and have more strength, but I still had pain and pressure in my chest. He gave me a few sprays of nitro on the trip, and by the time I got to the hospital I was feeling a lot better.

But then on Saturday afternoon, the whole thing happened again. Only this time, my diastolic pressure plummeted to 31. I didn't even know it could get that low while you were still alive and/or conscious. But my doctor had told me that if you lie flat, it will bring up your pressure, so I lay down and tested it again a few minutes later with a reading in the low 50's. I swallowed a few aspirin as a precaution and exhauted beyond reason, fell asleep for several hours. When I woke up and retested my vitals, I noticed that my pressure getting close to normal but my heart rate was again approaching tachycardia. I decided to take 100mg of my beta blocker, but within an hour my blood pressure began to drop and my monitor was showing irregular heartbeats. I took some magnesium supplements and barely crawled into bed.

Today has gone pretty much the same with my pressure beginning to drop and my heart rate climbing up past 100 again. I just pray that I can hold off any major events at least until tomorrow when I hope the cardiologist can squeeze me in for an emergency appointment. I've learned to avoid caffeine and other stimulants and to force myself to cough when I feel light-headed. But mostly I have to stay lying down, which is a difficult feat in a house badly in need of cleaning, laundry in need of washing and folding, and countless other household chores that are beckoning. I know there are a lot of you out there praying for me, thinking about me, and maybe even worrying. I don't know what else is in store for me, but I love and appreciate you all and your outpouring of love and encouragement.

For now, I leave you with some verses from my favorite Scripture passage,
"Where can I go from your Spirit? Where can I flee from your presence? If I go up to the heavens, you are there; if I make my bed in the depths, you are there. If I rise on the wings of the dawn, if I settle on the far side of the sea, even there your hand will guide me, your right hand will hold me fast." -Psalm 139:7-10 Please know that no matter what happens next, I am safe in His care.