Thursday, June 30, 2011

The Cause Within You


A Book Review


For those of us who have always been taught that God has a plan and a purpose for each of us, often the next question is "But what is it?" If this is something you've been asking yourself or if you already know your purpose but just don't where to begin, this book is probably for you. Author Matthew Barnett shares his personal story about founding a non-profit outreach called the Dream Center to minister to some of the most desperately hopeless people in Los Angeles, CA. Through sharing his journey and those of the many volunteers who have shared in his cause, he gives practical methods for finding the cause you were created for, rolling up your sleeves, and allowing God to bless your efforts.

It's difficult not to be inspired by Barnett and his team when reading about the lives that are changed through this ministry and the believers who are actually out in the world putting "feet to their faith." I think we all have a hunger to do something that really matters instead of just living a mundane, superficial life day after day. The way Barnett was able to translate his experiences, whether failures or successes, into practical applications for others makes this much more than an autobiography. It's also a challenge for each of us to find our personal cause and begin living it now or to join someone else's until we do.

Disclosure of Material Connection: I received this book free from Tyndale House Publishers as part of their book review bloggers program. I was not required to write a positive review. The opinions I have expressed are my own. I am disclosing this in accordance with the Federal Trade Commission’s 16 CFR, Part 255 : “Guides Concerning the Use of Endorsements and Testimonials in Advertising.”

Friday, June 24, 2011

The Day the Music Lived




"Sometimes the world tries to knock it out of you, but I believe in music the way some people believe in fairy tales."
-August Rush



I don't know when the music died in my heart.

Maybe it died a little bit the first time someone told me my music was "too contemporary for church."

Maybe it was when a "well-meaning Christian" told me that I shouldn't sing about faith until mine was stronger.

Perhaps I believed the lies of the Enemy that I was too flawed, too damaged, to share my songs of faith with others.

Could it be that I was told too many times that I needed to take some time off from music because of chronic illness?

It's possible that the loneliness of being housebound day after day, feeling forgotten by the world, began to eat away at the music.

Did I let the fear that my illnesses would be a distraction to the worship of others cause my lips to be still, my voice to be hushed?

But I am a worshiper. I have the heart of a worshiper. With all my faults, my weaknesses, and my failures, God has gifted me to praise Him and lead others to praise Him. I will keep silent no longer. I will not let the rocks cry out in praise to God in my place.

There is a silent place in my corner of the world that needs to be filled with the sounds of uninhibited, reckless worship to my Savior. And I will use my voice.

"I will sing to the LORD all my life; I will sing praise to my God as long as I live." -Psalm 104:33

Wednesday, June 15, 2011

Distractions


"It is our goal at Elevation [Church] to offer a distraction free environment for all our guests..." That was the response from a church who has found itself in a media firestorm after reportedly escorting a mother and her young disabled son from the Easter worship service when he shared an audible "Amen." My initial response was one of shock and anger because I, too, have been told that I was a distraction due to my health issues and was asked to leave my Christian college where I was studying for the ministry. I remember thinking, "Sure, I have chronic illness, but don't I deserve to have a life too?"

I really wanted to be sure I had the whole story and not just a bunch of one-sided media hype. When I spoke with Campus Pastor John Bishop, he admitted that "distraction was a poor choice of words" in this case and that they were trying to communicate that anyone exhibiting distracting behaviors like "ringing cell phones, people leaving from the front row and trying to go back to that same seat, or other loud noises" was encouraged to use the overflow area, which he says is about 20 feet from where Helms and her son were seated before they were relocated. According to Bishop, Helms was discreetly approached by an usher he describes as "an incredible man" on two occasions to make her aware the overflow room was available, but when her 12-year-old son, who has cerebral palsy, continued to make loud, unintelligible sounds (his mom says he was saying "Amen"), they were asked to move to the area where they could "have the exact same message and experience" without disturbing others. The pastor also explained, "There is no rule that keeps anybody out of the auditorium" and that "most people will remove themselves" to the overflow area if they are in one of these types of situations.

I'm a preacher's kid, so I understand the need for things to be done "decently and in order" and especially for people to have an opportunity to hear the life-changing message of the gospel. But I have to wonder where we draw the line. I was assured that Elevation Church doesn't discourage others from shouting "Amen" or being expressive in worship...unless it becomes a distraction. I guess because people could not understand Jackson Helms' expressions of worship, it was unacceptable. I'm just not sure what exactly should have been done in that situation. And on a personal note, I'm often afraid that my cataplexy attacks could distract others who may think I've fallen asleep, or that I really shouldn't sing in the choir because of the possibility of experiencing muscle weakness and collapsing before the congregation. Should I just not serve at all so I don't disturb anyone's experience?

This was a tough topic for me because it hit so close to home. But I can't help but think it's so easy to view people and their problems as a distraction instead of an opportunity for us to have compassion, to reach out, and to even learn from them. Even Jesus' apostles felt that children wanting to see Jesus were a distraction, but Jesus said, "Let the little children come to me, and do not hinder them." And when Jesus was preaching, some men tore off the roof to lower a paralyzed man down to be touched by the Healer. I bet that wasn't on the Order of Service!

I'm sure Bishop and the usher involved weren't trying to embarrass anyone or cause them to feel unwelcome. And from the statement the church later issued, it's clear they have programs for those with special needs and are doing more to learn about how to provide a better experience for them in the future. In 18 years of living with chronic illness I've learned that people do not understand what it's like to live with illness or disability, and they probably never will unless they experience it personally or through a loved one. They'll likely never appreciate the valiant effort it takes physically and emotionally for someone like us to even make it to a worship service. But we can all be a little more understanding and loving, realizing that church is not a building or a well-orchestrated performance, but a group of people who love the Lord and want to grow and share our lives with others like us. But life is chaotic, it's loud, and it's sometimes distracting to our vision and expectations. Let's make room for those distractions, even if someone tears off a roof now and then!

Monday, June 13, 2011

Guest Post - Deanna's Story


I am honored today to do a guest post for fellow- spoonie Ashley on her blog Searching for Health. Ashley resides in beautiful British Columbia with her husband and 2 dogs. She was diagnosed with juvenile hypothyroidism at the age of eight and then re-diagnosed with a thyroid conversion problem at the age of thirteen. In 2008 she was finally given a proper name for her illness; she is hypothyroid with partial peripheral thyroid resistance. Searching for Health is Ashley's forum for sharing information on thyroid resistance and empowering individuals with chronic illness to live their healthiest life.

Ashley shares the stories of others on Mondays for a series she calls "My Story Mondays." You can read my story by clicking here:

Monday, June 6, 2011

Passing the Torch - A Tribute to Molly Mizerak



Molly Mizerak
8.18.1962 - 6.1.2011


"Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles. And let us run with perseverance the race marked out for us, fixing our eyes on Jesus, the pioneer and perfecter of faith..." -Heb 12:1-2

In just a few minutes, hundreds of people in the Loudoun County, VA area will gather at our former church to celebrate the life of Molly Mizerak, who entered her eternal home in Heaven this past Wednesday after a 3.5-month battle with an aggressive brain tumor. Since I cannot be there in person, I have decided to take a few minutes to remember what she meant in my life and how she has influenced me both in her life and her death.

1. Molly knew Jesus and His Spirit radiated through her. You couldn't be around her for very long without feeling like you were in God's presence. It was evident that she spent time with God and that she was filled with His Spirit. She was like a light in a dark room, and you just wanted to be around and soak in that light.

2. Molly studied the Bible and used the Word to minister to others. She taught me about the power of the Scriptures to overcome spiritual warfare and defeat the Enemy's attacks in my life. She encouraged me to participate in Bible studies when I was struggling with discouragement and depression in my life due to chronic illness, and she even went out and purchased the study books and brought them to me! She knew the power that the Bible had in people's lives.

3. Molly got involved in people's lives and didn't consider their moments of crisis to be an interruption, but an opportunity to share the love of Christ. I can remember calling Molly in the middle of the night to pray with me, share Scripture with me, and encourage me. She was the first one to show up at the hospital when I was admitted and the one bringing me to a prayer service for healing, like the men who carried the paralytic to Jesus. She didn't just talk about spiritual things - she lived them.

4. Molly worshiped with abandon and was sensitive to the Holy Spirit's leading at all times. I can remember a clear change in the power of our worship services shortly after the Mizeraks came to our church. Molly always entered into worship with her whole heart, and it led others to a more open heart as well. She never hesitated to share a word about how God was working in her own life and had a very humble and loving way of admonishing others when it was needed.

5. Molly was real and authentic about her walk with God. She was very willing to share her own struggles with anxiety, unforgiveness, and spiritual warfare. She explained how God delivered her and how the Enemy continued to attack her in these areas. It was refreshing and encouraging to know that I was not alone and that someone who clearly loved God as much as Molly experienced her own spiritual battles too.

A few years ago when I was asked in a Bible study to name the 3 most influential people in my Christian walk; in addition to my parents and my youth pastor, I immediately thought of Molly. She influenced people wherever she went and used every day circumstances as moments to teach others. And her faith in the midst of these past few months as she struggled with her health was an example to me and countless others. We will only know in eternity how many people came to Christ or grew in the faith because of her story.

Since her death, reading and hearing the things that were said of her life is a true challenge to me to live my life in such a way that I would be able to leave a testimony of faithfulness for others to follow. Considering Molly's legacy, I am reminded of an old Steve Green song:

Surrounded by so great a cloud of witnesses
Let us run the race not only for the prize
But as those who've gone before us
Let us leave to those behind us
The heritage of faithfulness passed on through godly lives

Oh may all who come behind us find us faithful
May the fire of our devotion light their way
May the footprints that we leave
Lead them to believe
And the lives we live inspire them to obey
Oh may all who come behind us find us faithful


Molly has passed the torch of her testimony to so many of us left behind. As she cheers us on from heaven, I hope we will accept the challenge and live a life of faith that we learned from her remarkable journey.

Wednesday, June 1, 2011

Setbacks


People with chronic illness know this well: Just when you think you've got a handle on one aspect of your illness, another crops up to throw a monkey wrench into the whole thing. I've recently had a setback with my thyroid disease because I finally was able to convince my doctor to treat me for adrenal fatigue. It's common for people who have gone for years without a proper diagnosis of thyroid disease and/or those who were on a T4 only medication like Synthroid or Levoxyl to develop adrenal fatigue. I've known for years that my adrenals were causing me problems and contributing to my cataplexy, fatigue, and even excessive sweating. But convincing your doctor of that is another matter.

The new doctor at my primary doctor's practice is much more open to suggestions than other doctors I've seen, especially if you bring her some information to back up your theories. I had been trying to get my doctor to run my Reverse T3 for almost a year now, especially after I stopped losing weight on Armour and began having some hypothyroid symptoms again. This new doctor agreed to run it, and we quickly concluded that my body is not absorbing and utilizing the thyroid hormone that I'm taking, which is why I'm not losing weight, why I'm feeling so tired, why I get huge cracks in the heels of my feet, and why it makes perfect sense that my adrenals are failing too. I'm trying not to be annoyed that almost a year was wasted while my know-it-all doc ignored me, and focusing instead on feeling hopeful that this new doc is willing to treat my adrenals with hydrocortisone (HC).

But it's not easy treating the adrenals, let me tell you. For one thing, we're both at the mercy of piece-meal information. The 1st edition of the Stop the Thyroid Madness (STTM) book says to gradually increase your HC up to the proper dosage. But that would give me these incredibly sickening adrenalin rushes, kind of like the feeling you get after you've run a mile as fast as you can. So I asked people on the STTM Facebook page, and the author told me there had been a revision to the book advising you to begin at the full dose right away to avoid the adrenalin rushes. Ugh. So I started over again.

Then my Armour started making me sick. I would get these horrible gut-wrenching stomach pains, along with severe nausea right after I took my Armour. That's when I was advised to cut back on my thyroid meds. So now I feel terrible because I'm on the wrong dose of Armour. I started having one of the worst hypothyroid symptoms that I haven't experienced in almost two years: digestive issues. That's a polite way of saying that I have to run to the bathroom at a moment's notice. So now I'm carrying ginger root capsules around with me 24/7 like the pre-Armour days. I was told swallowing my HC with apple cider vinegar would help cut down on the stomach issues. Nope. The last time I tried that, I felt like someone had kicked me in the gut; and it felt like that ALL DAY LONG. I'll just stick with the ginger root, thank you.

To make a long story long-ish, I'm feeling a little frustrated and discouraged right now because I've essentially had to make myself feel sick in order to make myself feel better. I'm sure that makes sense in some realm of reality, but right now it just ticks me off. I have the energy of a slug and the personality of a porcupine being poked with a stick. So I just keep muttering this mantra under my breath: "A setback is a setup for a comeback. A setback is a setup for a comeback." Now where are those ginger capsules...

Related Posts Plugin for WordPress, Blogger...